PLEASE Help a very poorly little girl

Xcon11 said:
Hi Nick, appreciate the comment about you not belonging here, purely due to the nature of the forums, before you leave if you could PM me a contact number so I can get intouch before I donate it would be greatly appreciated.

I truly hope your daughter is well
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Hi , It is not for me. It is for Ataxia UK. I wouls not accept any money myself. There is adonations page on the website od if you google millie ormsby just giving uk it will take you too her just giving page. Millie is OK , she smiles through everything despite her discomfort , we take her lead on this. Best wishes Nick
 
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NickOrmsby said:
Hi , It is not for me. It is for Ataxia UK. I wouls not accept any money myself. There is adonations page on the website od if you google millie ormsby just giving uk it will take you too her just giving page. Millie is OK , she smiles through everything despite her discomfort , we take her lead on this. Best wishes Nick
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I hope things stay well for as long as physically possible. I shall donate shortly. All my best for you and your family
 
Thank you . I will stay on here for just as
short while in case anybody else has any questions concerning verification of OP post. Nick
 
To those people who made some seriously horrible comments in this thread, I really hope you feel sorry for what you have done!
 
hamd01 said:
To those people who made some seriously horrible comments in this thread, I really hope you feel sorry for what you have done!
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Do not worry , It is not the first time I have been accused of comimg from Nigeria. I am sure it wont be the last. I will get the contition Ataxia in the public eye then nobody will ever be accused again. Threads like this make me more determined to carry on.

Nick
 
my gosh you know some of you people are just worthless to society, im absolutely disgusted with some of the replys here.. im speechless and just want to throw up.. almost don't ever want to come back to this forum ever again. If one person starts hatin then 85% of the others will just follow along because thats all they know to do..

Nick and hamd01 wish you all the luck I will try my best to donate soon, right now im broke but i will bookmark the links.

excuse my while i throw up
 
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nethead01 said:
my gosh you know some of you people are just worthless to society, im absolutely disgusted with some of the replys here.. im speechless and just want to throw up.. almost don't ever want to come back to this forum ever again. If one person starts hatin then 85% of the others will just follow along because thats all they know to do..

Nick and hamd01 wish you all the luck I will try my best to donate soon, right now im broke but i will bookmark the links.

excuse my while i throw up
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Please excuse us for not believing everything on the net to be true.

If anyone is sick or knows someone ill please come to BHW so we can all donate to you!
 
"The story is about a little girl called Millie." u said that , but then in another post you said "this is a real little guy who has a real life threatening condition" Ive never heard ANYONE call a little girl a "little guy"

A fact is, this may very well be true. At the same time..its blackhatworld and there are people that would go wayyy blackhat. I could find a local story thats true as well, make a website, and say im the brother..the father...you get the point. im not totally doubting the story..just talking logic.
 
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Checkmate said:
Please excuse us for not believing everything on the net to be true.

If anyone is sick or knows someone ill please come to BHW so we can all donate to you!
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if i told you i made 1k per day you would believe me and beg me to tell you how i did it
 
Just another crazy thing i have noticed: Some hours ago he had a rep. of -3 , now he got a rep of +12 that sounds very crazy for me....just my two cent!
 
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adbot said:
Is your name Nick? Just wondering because I ran a whois on your domain:
Domain name:

milliemaesworld.co.uk
Registrant: Nick Ormsby
Registrant type: UK Individual

Funny that the site isnt registered to the family or a legitimate charity. care to explain that?
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from the net Mrs Ward set up Millie's Fund to raise money for her nineyear- old granddaughter Millie Ormsby, of Birmingham, who was diagnosed with Ataxia in February last year.
http://www.southwalesargus.co.uk/news/gwentnews/9033233.Pontypool_families_unite_for_fundraiser/
 
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carrepairs12 said:
from the net Mrs Ward set up Millie's Fund to raise money for her nineyear- old granddaughter Millie Ormsby, of Birmingham, who was diagnosed with Ataxia in February last year.
http://www.southwalesargus.co.uk/news/gwentnews/9033233.Pontypool_families_unite_for_fundraiser/
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Yes I saw that already and I modified my first post on this thread with updates as to the legitimacy of the thread. I never bashed anyone, only asked reasonable questions which were eventually answered. My condolences to the family I know what its like as a young member of my family is terminally ill. It is unfortunate.

I am also happy to see that hamd01 had his reputation repaired from -2 to +8 in the end.
 
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Wow is this thread still running . Thank you .The visitors and attention it is getting is more than I could of ever hoped for in months of work. To everybody who has taken part I say thank you, no matter what you said be it positive or negative. Without the doubters this thread would of died hours ago and the visitors would of dried up. A lot of people have learnt the word Ataxia today because of this thread. With a rare condition that is as important as money. Millie Mae's World. Raising awareness and funds for Ataxia UK with Smiles. Nick
 
If people did want to help then there is 3 videos on you tube in the name of milliemaesworld turn them viral forget the money that will come from the videos. Yes money is needed to pay the scientists to find a cure, they believe they can crack this one as they have identified the exact gene causing the problem. Read up on friedreich Ataxia. When they do crack it this will open the door for many more genetic disorders including MS MD MN and parkinsons. If you still doubt my legitimacy then just help me raise awareness of Freidreich Ataxia, not Millie Not Millie maes world , not me. I want no nority for doing this . I would like a cure for my daughter .
 
Talking about the science side, yes genetic disorders may be treated. They ran successful trials in dogs for a treatment for haemophilia b over 10 years ago. They know the gene's responsible and have run gene therapy trials using a manufactured retrovirus... Yet since then it's still not being used or avaliable.

I am very sceptical about if drug companies want cures or if they want treatments. A treatment is always more profitable than a cure.

In the meantime I will send some traffic your way...
 
NickOrmsby said:
If people did want to help then there is 3 videos on you tube in the name of milliemaesworld turn them viral forget the money that will come from the videos. Yes money is needed to pay the scientists to find a cure, they believe they can crack this one as they have identified the exact gene causing the problem. Read up on friedreich Ataxia. When they do crack it this will open the door for many more genetic disorders including MS MD MN and parkinsons. If you still doubt my legitimacy then just help me raise awareness of Freidreich Ataxia, not Millie Not Millie maes world , not me. I want no nority for doing this . I would like a cure for my daughter .
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WIKIPEDIA
Currently, there is a treatment approved in Canada called idebenone.

I hope for the best on both of you and your beautiful daughter.
 
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geekkeeper said:
WIKIPEDIA
Currently, there is a treatment approved in Canada called idebenone
I hope for the best on both of you and your beautiful daughter.
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Millie takes 2 x 150mg tablets of idebenone each day, she has done since the day she was diagnosed and she will continue to do so for the rest of her life. Idebenone does improve heart function this was proved with Millie's second heart echo. Idebenone does not stop the muscle thickening which will eventually take her life. Her heart will eventually lose its rhythm because of the muscle thickening, they will operate and insert a 'gadget' that will shock her heart hopefully back into the correct rhythm. They will not perform a heart transplant as FA will do exactly the same to the new haert as it has to this heart. At present there is no cure for FA .
 
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