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This World Sucks! Got a rare disease and my public healthcare wont treat me!

Discussion in 'BlackHat Lounge' started by majikz10, Sep 19, 2012.

  1. majikz10

    majikz10 Registered Member

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    Basically from january i started to get a load of wierd symptoms,headaches,stiff neck,ringing ears,sensitive to light,heavy legs,body aches,legs tremblines,sweating,bones clicking,rashes,tingling and the list goes on and on and on.Doctors said i was deppressed wich i was a bit but thats because one week i was fine the next few weeks could barley walk or talk.

    Started taking the anti-deppresent for 3 months with no improvement i was getting worse.Couldnt walk now.I knew there no way this was just deppression.Kept seeing the doc and they was like your just deppressed.I started looking up my symptoms online and they matched lymes disease everytime.I told my mum i think i have this lymes disease and she was like oh thats funny you said that cause your aunt had it.From then i knew it mad sense because i was staying at my aunts for 5months in the countryside.

    Told my doctor this they was like no your deppresed i said how can rashes and bone clicking be depression.They said it was all in my head and try pit me on anti-phycotics.I didnt take them cause i was sure it was this lymes.They then sent metoa phyciatrist who asked what was wrong i showed him pics of the rashes and vids of mylegs trembling and also showed him all my bones click with slight movemet.He was in shock and was like no way is that deppresion they need to do more testing and sent a letter to them.

    I went back and they said Jordan how many times have we told you your depressed.By this time i was that bad i had to move out of my flat and move back in with my mum as i started forgetting how to do basic things.My mum finnally listend and took me to a privat hospital.The only hospital in Uk that deals with lymes disease.Straight away on symptoms pics vids and the fact i stayed in a known tick area and that my aunt had cought it from the same place they diagnosed me.Started me on anti-biotics.

    4 weeks later my tests came back Possotive Lymes Disease.I Knew this 5months ago thats what make me so angry! Certain things improved on them 4weeks of oral antibiotics but stuff like word finding,stuttering,memorry,confussion,tingling all got worse.The private MD said i have neuro lymes disease and that these oral tablet arnt penetrating the blood brain barrior and he said i need IV treatment.My mum had just paid £2000 for all the testing and they wanted £3000 for 4weeks IV.I ended up falling out with my mum over this and moving back home cause she seemed to think that eating healthy and ill be fine.But she hasnt got a clue about it.

    So i went back to my (FREE Healthcare) with my results.And they say "we dont think you have lyme"I was like its in black and whit i have every symptom,my aunt had it what is your problem.Then they said they want to retest for it but lymes isnt straight forward and the test for it in the UK are crap and give loads of false negatives.Thats why i went private and had my tests sent to the best tick bourne disease place in Clifornia.

    This is a joke i have a rare disease that none of my doctors here have a clue about.I Dont have the money to see the only specialists in the Uk anymore.Lymes disease is sorounded by polotics and money.Some ideots came out with some guidlines saying that after 2weeks of treatment its gone.Well i and 1000s of other are proof that thats ball**** and its partly so insurance companies and healthcare dont have to fund it as its very expensive to treat.This has sucked the life out of me i lie in bed most days in pain with things only going to get worse.All comes down to money cause IV cost a lot of money and is probley why there not treating me.

    Things are that bad i feel like i have atheritus in every joint,i cant even rember the day or time,i dont sleep im that stressed out.Im so ill and also trying to fight my case to get the treatment i need.But then you have alcholics getting liver transplants,i didnt ask for this f**** disease.This world is very wrong.......
     
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  2. WorkHardL0veLife

    WorkHardL0veLife Regular Member

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    I dont think this world is suppose to be good lol .. i believe we're here to be tested upon. And i'm pretty high right now which is why i said that but ummm yea man . Chip chip cheerio .. when theres a will theres a way. Find a doctor son
     
  3. inumel

    inumel Senior Member

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    I will Be praying for you bro. Yes this is a hard time and it seems like there is no way out but don't give up. You have to continue to be strong praying for you
     
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    Last edited: Sep 19, 2012
  4. Roparadise

    Roparadise BANNED BANNED

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    Melittin is very effective against lyme disease from what I researched.

    http://www.sigmaaldrich.com/catalog/product/sigma/m2272?lang=en®ion=US
     
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  5. rakoom2002

    rakoom2002 Supreme Member

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    dude im sorry to hear about your ailments but youre lucky to have health care. I dont have health care.
     
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  6. silentthunder

    silentthunder Jr. VIP Jr. VIP Premium Member

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    ^ ^ Same here. You're in my prayers. Hopefully your path to health includes mild daily exercise. Our bodies have more lymph fluid than blood. Lymph is garbage disposal system just as important as what you do in the toilet. Catch is, only way lymph system functions properly is with daily exercise. Reason doctors might not have told you this is they get little or no focus on exercise in med school because exercise is preventative medicine and preventative anything is bad for business. Sucks! :(

    All the best! :)
     
  7. majikz10

    majikz10 Registered Member

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    Thanks people will keep my head up
     
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  8. conrulez

    conrulez Power Member

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    Hang in there! Just take it one day at a time and keep putting pressure on them to treat you properly. This too shall pass! Keep your head up and just focus on the here and now. You'll make it!

    Best of luck and God Bless,
    Con
     
  9. abuhanifa

    abuhanifa Senior Member

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    I just prayed for you . Keep faith in God and Dr. Everything will be fine .
     
  10. phatzilla

    phatzilla Supreme Member

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    praying wont get you better. Im shocked that your mother wouldnt shell out the 3k to possibly cure you. Ive heard plenty of these lyme horror stories and the doctors telling you its depression make me madder than anything else i can think of. What if i punch you in the dick, would that be depression when you're on the floor crying? Dumb fucking doctors. You need proper treatment, and if the experts say its IV antibiotics, then that's what it is. Try to get the money together and get treated, its a treatable disease.
     
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  11. Hadouken

    Hadouken Registered Member

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    Try to go to the newspaper and find someone who will make a report about the hospitals refusing to treat you. Stand outside the hospital with a big sign saying "I have this disease and they are refusing to treat me." It will surely get you more attention and better treatment. Many legitimate diseases go misdiagnosed as depression and attention seeking when they "stop and start", and doctors are not usually liable for this misdiagnoses. Your only chance is to FORCE them to pay attention and treat you.
     
  12. deathripper

    deathripper Junior Member

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    Those doctors are really fucking dumb. Try to relax a bit man. Stop being so negative for it will only worsen your condition.
     
  13. T2tkid

    T2tkid Jr. VIP Jr. VIP Premium Member

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    Unlike @phatzilla@ Prayers can get you better, i will be praying for you. I hope you get better soon.
     
  14. NeoPat

    NeoPat Power Member

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    Mate in the UK theres free healthcare cant you get it on the NHS, go see a UK GP then get referred or have i missed something?? Anyway all the best you will be rewarded for your struggle and patience im sure you will like others have said this is your test be steadfast in it. And all the best..
     
  15. psytrance

    psytrance Power Member

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    anger is not going to help you bro!

    I understand you.... I do really understand you!!!

    I am sure you will be OK if you believe in it. Things will be different and you HAVE the strength to overtake any situation.

    Try to walk 2-3 times a day (even if you cant just try it). Eat a LOT of fruits (shakes) and try to eat healthy. I am not a doctor but this must help you!
     
  16. c4ver

    c4ver Newbie

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    sorry to hear that bro, stay strong
     
  17. ReALeST

    ReALeST Power Member

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    may the Lord guide u in ur darkest of times;)
     
  18. kuryakin

    kuryakin Regular Member

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    Sorry to hear about this mate. I've been in a similar situation, but with mercury poisoning, and had absolutely no help from the medical profession. I do'nt know much about lymes but i know it's treatable. My advice is to look into alternative treatments, educate yourself as much as you can and forget about help from the medical industry.. The single greatest resource for me when i was beginning to treat myself was a Yahoo group for heavy metals. Without the people on there i don't think i would have made it. I don't have time to look just now, but i seem to remember there is one for lymes as well..
    Good luck.
     
  19. seo-dude

    seo-dude BANNED BANNED

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    I am sorry about that. My prayers are always for you. Hope to see you well soon.
     
  20. LeMerovigian

    LeMerovigian BANNED BANNED

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    You must think positive in mind, body and spirit. Understand that your body is your responsibility and no one else will be as directly affected as yourself from harm done to it. Immerse yourself in knowledge regarding the disease and take time to accept and heal. All will be better in due time. God Speed!
     
    Last edited: Sep 19, 2012