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Hello everybody , I have just had an email saying you missed me. :D. I was wondering who it was . :D Dont be shy own up . :D

Could somebody just put the link here for me. I do think it be fun to watch , a way of giving something back. entertainment even if it is extracting URINE out of gamers.

While Millie may not be the poorest or the porliest child worlwide, and compared to some is very very lucky. The condition Ataxia which is what this thread is about is evil. Millie started above average , walking at 10 months , vocabulary of a 5 year old at 2, Millie was diagnosed last year and...

Hi , It is a 'just giving page', we use this in the UK because Ataxia UK can claim extra 28% Gift AID from tax payers on top of their donation. I would not accept any paypal payments. If you are having problems you can donate direct to Millie's Charity . Ataxia uk org donate . Thank you

every country in the world has an ataxia charity , either promote or donate to those ataxia charity's in your country. I will repeat as lost in thread this is not about my daughter leaving behind a legacy , neither is it for my own notoriety. It is what it is. Exactly as on tin with NO hidden...

Thanks Boro, I love the banner, shame i am new had to delete link . I wish i understood seo, I would be there with you . I just wish other people could see the bigger picture as you do, the power of this forum is unbelievable, as you said give it to ataxia uk , friedreich ataxia research aliance...

I cannot edit that video yet as I am at my moms in wales, when I get home I could add a title screen and an end screen detailing how horrible ataxia is, could this be used in the campaign, is this video good enough to go viral, I personally think so but as I said I am bias,I was there everybody...

Thanks Boro, Is it fantastic what these children did , or is it me ?

Millie fell asleep unusual usually takes me hours with her nerves tingling must be tired from all the attention today. She did feel special.And so she should .After the thread took a positive note I will ignore the negative again. Can anyone post the link to the video here , I can't being new. I...

I am out of here , cant handle the tears

I have to go now and travel to wales to help with a jumble sale my mom has arranged to raise funds , it is in wales which 120 miles from my home. The jumble sale is in the south wales argos. They have arranged for Millie to cut a ribbon to open the jumble sale tomorrow at 12pm. I will not be...

Your words just made me cry. Thank you so much, this is another reason why I have chosen to put my daughter up for the world to see , so no other parent has to go through what I am going through. I never got out of bed for 14 months, then I decided to fight back, now I am getting slammed in...

It is not about that girl it is about every girl every boy every man every woman with any form of Ataxia worldwide of which there are about 30 different forms. Friedreich Ataxia is very rare. The fact that Millie was diagnosed so young is also very rare. Friedreich Ataxia has no rules , every...

Hi Gabby You are so right. Freidreich Ataxia Research Aliance in America feel they are so close that in their last scientic conference just a a few days ago have put forward a motion to discuss at next years annual meeting how they will distribute the cure WORLDWIDE. I am not sure if it has...

Hi , I did not setup the website myself as I have no knowledge of how to do this. As far as I was concerned I was on the list , as for Ataxia UK , there is a finanacial statement and trustee annual report on the ataxia uk page of Millie's website as well as on thier own website. Their phone...

There are 42 pages on the website, why would I create 42 pages if it was a scam, surely 6-10 would be enough. There are 3 video on milliemaesworld all with pictures of Millie one where her mom jumps 200ft scared to death from a crane in a superwoman outfit to raise money for Ataxia UK , why...